{"id":9619,"date":"2018-06-12T01:00:00","date_gmt":"2018-07-27T09:40:29","guid":{"rendered":"http:\/\/www.05921.net\/index.php\/2018\/07\/27\/%e4%b8%96%e7%95%8c%e7%9e%a9%e7%9b%ae%e7%9a%84%e6%96%b0%e5%8a%a0%e5%9d%a1-%e7%bd%95%e8%a7%81%e7%97%85%e6%82%a3%e8%80%85%e5%b9%b8%e7%a6%8f%e5%90%97%ef%bc%9f\/"},"modified":"2018-07-27T17:40:30","modified_gmt":"2018-07-27T09:40:30","slug":"%e4%b8%96%e7%95%8c%e7%9e%a9%e7%9b%ae%e7%9a%84%e6%96%b0%e5%8a%a0%e5%9d%a1-%e7%bd%95%e8%a7%81%e7%97%85%e6%82%a3%e8%80%85%e5%b9%b8%e7%a6%8f%e5%90%97%ef%bc%9f","status":"publish","type":"post","link":"https:\/\/www.05921.net\/index.php\/9619\/","title":{"rendered":"\u4e16\u754c\u77a9\u76ee\u7684\u65b0\u52a0\u5761 \u7f55\u89c1\u75c5\u60a3\u8005\u5e78\u798f\u5417\uff1f"},"content":{"rendered":"
\n

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<\/p>\n

\u6bcf\u6b21\u53bb\u770b\u533b\u751f\uff0c\u9a6c\u5148\u751f\u90fd\u8981\u652f\u4ed8\u8d85\u8fc71\u4e07\u65b0\u5e01\u7684\u8d26\u5355\u3002<\/span><\/p>\n


<\/p>\n

\u6bcf\u4e2a\u6708\uff0c\u8fd9\u5bb6\u56db\u53e3\u5c0f\u5bb6\u5ead\u90fd\u9762\u4e34\u4e00\u5f204\u4e07\u65b0\u5e01\u7684\u533b\u7597\u8d26\u5355\u3002<\/span><\/p>\n


<\/p>\n

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<\/p>\n

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<\/p>\n

\u5e9e\u8d1d\u75c5\u662f\u65e0\u6cd5\u6cbb\u6108\u7684, \u800c\u4e14\u4e5f\u901a\u5e38\u662f\u81f4\u547d\u7684\u3002<\/span><\/p>\n


<\/p>\n

\u4e3a\u4e86\u6d3b\u547d, \u4ec5\u4ec58\u5c81\u7684Chloe\u9700\u8981\u7ec8\u8eab\u5403\u836f\u3002<\/span><\/p>\n


<\/p>\n

\"\u4e16\u754c\u77a9\u76ee\u7684\u65b0\u52a0\u5761<\/p>\n

\uff08\u9a6c\u5148\u751f\u548c\u5973\u513fChloe. \u6d77\u5ce1\u65f6\u62a5\u7167\u7247<\/em>\uff09<\/span><\/p>\n


<\/p>\n

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<\/p>\n

\u4f46\u662f\uff0c\u6709\u4e00\u5b9a\u4e0d\u53ef\u5426\u8ba4\u3002\u4e3a\u4e86\u6551\u547d\uff0c\u9a6c\u5148\u751f\u5fc5\u987b\u6bcf\u6708\u4ed8\u51fa\u6602\u8d35\u7684\u533b\u7597\u8d39\uff0c\u5426\u5219\uff0c\u5973\u513f\u7684\u751f\u547d\u5c31\u4f1a\u50cf\u7f3a\u5c11\u517b\u5206\u7684\u82b1\u9aa8\u6735\uff0c\u5e72\u67af\uff0c\u51cb\u96f6\u3002<\/span><\/p>\n


<\/p>\n

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<\/p>\n

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<\/p>\n

\u6bcf\u6b21\u533b\u9662\u770b\u4e00\u6b21\u75c5, \u5c31\u53ef\u80fd\u9762\u4e34\u8d85\u8fc71\u4e07\u5143\u7684\u8d26\u5355\u3002<\/span><\/p>\n


<\/p>\n

\u552f\u4e00\u6279\u51c6\u6cbb\u7597\u5e9e\u8d1d\u75c5\u7684\u9176\u66ff\u4ee3\u7597\u6cd5\uff0c\u7f8e\u5c14\u8d5e\u7531<\/span>\u8d5b\u8bfa\u83f2\u7684\u5065\u8d5e\uff08Genzyme\uff09\u516c\u53f8<\/span>\u7814\u53d1\u3002<\/span><\/p>\n


<\/span><\/p>\n

\u901a\u8fc7\u9759\u8109\u6ce8\u5c04\uff0c\u7f8e\u5c14\u8d5e\u6bcf\u5468\u90fd\u9700\u8981\u6df7\u5408, \u7136\u540e\u6ce8\u51658\u5c81\u7684Chloe\u7684\u4f53\u5185\u3002<\/span><\/p>\n


<\/p>\n

\u53bb\u5e74\uff0c\u7f8e\u5c14\u8d5e\u5728\u56fd\u5185\u4e5f\u83b7\u5f97\u6279\u51c6\u4e0a\u5e02\uff0c\u5e26\u6765\u4e86\u5e9e\u8d1d\u75c5\u60a3\u8005\u7684\u798f\u97f3\u3002<\/span><\/p>\n


<\/p>\n

\u65b0\u52a0\u5761\u5e73\u5747\u7684\u4eba\u5747\u6536\u5165\u9ad8\u8fbe<\/span>52\uff0c960\u7f8e\u5143<\/span>\uff0c\u867d\u7136\u6bd4\u4e0d\u4e0a\u7f8e\u56fd\u768457\uff0c466\u7f8e\u5143\u4e00\u5e74\uff0c\u4f46\u662f\u6bd4\u9999\u6e2f\u768443\uff0c681\u7f8e\u5143\u8981\u9ad8\u8fd1\u4e00\u4e07\u7f8e\u5143\u3002<\/span><\/p>\n


<\/span><\/p>\n

\"\u4e16\u754c\u77a9\u76ee\u7684\u65b0\u52a0\u5761<\/p>\n

\uff08\u65b0\u52a0\u57612016\u5e74\u4eba\u5747GDP\uff0c\u9ad8\u4e8e\u9999\u6e2f\uff09<\/p>\n


<\/p>\n

\u8fd9\u6837\u7684\u9ad8\u6536\u5165\u56fd\u5bb6\uff0c\u7f55\u89c1\u75c5\u60a3\u8005\u7684\u5bb6\u5ead\u600e\u6837\u8d1f\u62c5\u5982\u6b64\u9ad8\u6602\u7684\u533b\u7597\u8d39\u7528\u5462\uff1f<\/span><\/p>\n


<\/p>\n

\u800c\u4e14\uff0c\u7f55\u89c1\u75c5\u9700\u8981\u957f\u671f\u751a\u81f3\u7ec8\u8eab\u670d\u836f\uff0c\u533b\u7597\u8d39\u7528\u8fc5\u901f\u79ef\u7d2f\uff0c\u8d1f\u62c5\u4e0d\u53ef\u5c0f\u89c6\u3002<\/span><\/p>\n


<\/p>\n

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<\/p>\n

\u65b0\u52a0\u5761\u5982\u4f55\u5b9a\u4e49\u7f55\u89c1\u75c5\uff1f<\/span><\/strong><\/span><\/p>\n


<\/p>\n

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<\/p>\n

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<\/p>\n

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<\/p>\n

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<\/p>\n

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<\/p>\n

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<\/p>\n

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<\/p>\n

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<\/p>\n

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<\/p>\n

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<\/p>\n

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<\/p>\n

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<\/p>\n

\u4f46\u662f\uff0c\u6bcf\u6708\u5fc5\u987b\u8d2d\u7f6e\u9700\u8981\u7684\u4e1c\u897f, \u6b64\u5916\uff0c\u8fd8\u9700\u8d2d\u4e70\u66f4\u6602\u8d35\u7684\u4e00\u6b21\u6027\u6d88\u8d39\u54c1,  \u5982\u4e13\u95e8\u7684\u8f6e\u6905, \u547c\u5438\u673a, \u4ee5\u5e2e\u52a9\u5979\u54b3\u55fd\u3002<\/span><\/p>\n


<\/p>\n

\u5bf9\u4e8e\u5176\u4ed6\u6ca1\u6709\u4fdd\u9669\u7684\u7f55\u89c1\u75c5\u5bb6\u5ead\uff0c\u6709\u65f6\uff0c\u836f\u4f01\u4f1a\u63d0\u4f9b\u63f4\u52a9\uff0c\u5e2e\u52a9\u4e00\u90e8\u5206\u7684\u836f\u7269\u6cbb\u7597\u8d39\u7528\u3002<\/span><\/p>\n


<\/p>\n

\u4f46\u662f\uff0c\u9a6c\u5148\u751f\u8868\u793a\uff0c\u672a\u6765\u4e0d\u5bb9\u4e50\u89c2\u3002<\/span><\/p>\n


<\/p>\n

\u5f53\u5973\u513f\u4e0d\u65ad\u957f\u5927\u4e86, \u9700\u8981\u66f4\u591a\u7684\u836f\u7269\u6765\u6551\u547d\uff0c\u5979\u53ef\u80fd\u4f1a\u5728\u67d0\u4e2a\u65f6\u95f4\u8fbe\u5230\u6bcf\u5e74\u7684\u4fdd\u9669\u7d22\u8d54\u9650\u989d\uff08\u4fdd\u9669\u8d1f\u62c5\u4e00\u5b9a\u989d\u5ea6\uff0c\u8d85\u51fa\u90e8\u5206\u9700\u8981\u81ea\u5df1\u8d1f\u62c5\uff09\u3002<\/span><\/p>\n


<\/p>\n

\u6700\u6839\u672c\u7684\u662f\uff0c\u7531\u4e00\u79cd\u6839\u672c\u7684\u6cbb\u7597\u65b9\u6cd5\uff0c\u5c3d\u5feb\u7814\u5236\u51fa\u6765\uff0c\u83b7\u6279\u4e0a\u5e02\uff0c\u8fd9\u6837\u624d\u80fd\u5e26\u6765\u7f55\u89c1\u75c5\u60a3\u8005\u7684\u798f\u97f3\u3002<\/span><\/p>\n


<\/p>\n

“\u6211\u4eec\u6d3b\u7740\u4e00\u5929\u662f\u4e00\u5929\u3002\u6211\u4eec\u4e0d\u6562\u60f3\u5f97\u592a\u8fdc\u3002\u201c\u9a6c\u5148\u751f\u8868\u793a\u8bf4\u3002<\/span><\/p>\n


<\/p>\n

\u4f60\u5bf9\u65b0\u52a0\u5761\u7684\u7f55\u89c1\u75c5\u600e\u4e48\u770b\uff1f<\/span><\/em><\/p>\n

\u8bf7\u7559\u8a00\u5206\u4eab\u770b\u6cd5\uff01<\/span><\/em><\/p>\n


<\/p>\n

\u53c2\u8003\u6587\u7ae0\uff1a<\/strong><\/span><\/p>\n

https:\/\/www.straitstimes.com\/singapore\/health\/the-astronomical-costs-of-drugs-to-treat-rare-diseases<\/span><\/p>\n


<\/p>\n

\u4f60\u53ef\u80fd\u559c\u6b22<\/strong>\uff1a<\/span><\/p>\n

\u810a\u9ad3\u808c\u840e\u7f29SMA\u65b0\u836f\u518d\u83b7\u533b\u4fdd\u8986\u76d6<\/span><\/a>
<\/p>\n

30\u4e07\u7684\u836f\u4ef7\u7531\u8c01\u5b9a\uff1f\u592a\u9ad8\u6709\u4eba\u4e0d\u5e72\u4e86\uff01<\/span><\/a>
<\/p>\n

\u8d2d\u836f\u96be \u836f\u4ef7\u8d35 \u60a3\u8005\u547c\u5401\u5904\u65b9\u836f\u7f51\u552e \u7ed9\u4e00\u7ebf\u751f\u673a<\/span><\/a>
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\u845b\u5170\u7d20\u5927\u4f6c\u518d\u51fa\u5c71 \u5b89\u4f1f\u70c8\u8fd9\u56de\u8981\u780d\u836f\u4ef7<\/span><\/a>
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\u670d\u52a1\u65b0\u836f\u7814\u53d1 \u628a\u63e1\u6295\u8d44\u8d8b\u52bf<\/span><\/em><\/span><\/p>\n

\u6bcf\u5929\u7528\u65b0\u8bf4\u8bdd \u51b3\u7b56\u4e0d\u53ef\u6216\u7f3a<\/span><\/em><\/span><\/p>\n

\u5065\u70b9\u5b50ihealth<\/em><\/strong>\u662f\u533b\u836f\u884c\u4e1a\u9886\u5148\u7684\u6295\u8d44\u987e\u95ee\u8d44\u8baf\u5e73\u53f0\uff0c\u4e13\u6ce8<\/em>\u7f55\u89c1\u75c5\uff0c<\/strong>\u751f\u7269\u7c7b\u4f3c\u836f\uff0c<\/strong><\/em>\u65e5\u97e9\u5370\u5ea6<\/strong><\/em>\u5065\u5eb7\u884c\u4e1a\u7684\u6700\u65b0\u52a8\u5411\u3002<\/em><\/span><\/p>\n

\u8054\u7cfb\u6211\u4eec\u3002\u8bf7\u53d1\u7535\u90ae\uff1ahxyang_98@hotmail.com<\/span>.<\/em><\/span><\/p>\n

\u4f60\u4e5f\u53ef\u4ee5\u5728\u4efb\u4f55\u5065\u70b9\u5b50\u6587\u7ae0\u540e\u7559\u8a00\u3002\u8bf7\u7b80\u77ed\u8bf4\u660e\u5177\u4f53\u9700\u6c42\u3002\u6211\u4eec\u4e00\u822c\u572824\u5c0f\u65f6\u4e4b\u5185\u8054\u7cfb\u3002<\/em><\/span><\/p>\n

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\u59cb\u53d1\u4e8e\u5fae\u4fe1\u516c\u4f17\u53f7\uff1a \u5065\u70b9\u5b50ihealth <\/p>\n<\/blockquote>\n<\/div>\n","protected":false},"excerpt":{"rendered":"

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